How to Work With Aging Parents When They Resist Help

David Solie’s 89-year-old mother, Carol, was unyielding. “No, I will not move,” she told her son every time he suggested that she leave her home and relocate to a senior living residence.

It didn’t stop there. Although Carol suffered from coronary artery disease, severe osteoporosis, spinal compression fractures and unsteady balance, when Solie brought in aides to help after a bad fall and subsequent surgery, his mother fired them in a matter of days.

“In her mind, she considered it a disgrace to have anybody in her home,” Solie said. “This was her domain for over 50 years, a place where she did everything by herself and in her own way.”

Conflicts of this sort often threaten relationships between aging parents and their adult children just when understanding and support are most needed. Instead of working together to solve problems, families often find themselves feuding and driven by feelings of resentment and distress.

Solie considered going to court to ask for a conservatorship — a legal arrangement that would have given him control over his mother’s affairs. But his lawyer advised that this course of action would destroy Solie’s relationship with his mother.

Solie is now a health care consultant who helps other adult children make decisions about caring for their parents. Make preserving trust and keeping your relationship intact — not winning arguments — a priority, he suggests. What your parents most need is confidence that you’ll listen to them, take their concerns seriously and stay by their side no matter what happens, he says.

How adult children communicate with their parents can go a long way toward easing tensions, Solie says. Instead of telling your parent what to do, ask how they’d prefer to solve problems. Elicit their priorities and recognize their values when making suggestions. Give them choices whenever possible. Be attuned to their unexpressed needs and fears.

When Lee Lindquist, chief of geriatrics at Northwestern University’s Feinberg School of Medicine, asked 68 older adults in eight focus groups why they resisted help, the answers varied. They said they were afraid of losing their independence, becoming a burden on loved ones, being taken advantage of and relinquishing control over their lives.

Asked what might make a difference, the older adults said they liked the idea of “interdependence” ­— acknowledging that people need one another from childhood to older age.

Here are some tips to help navigate a loved one’s final years:

Be patient. Give your parents time to adjust.

At first, Jane Wolf Frances’ 87-year-old mother, Lillian Wolf, wouldn’t consider moving from New York City to the Los Angeles area, where Frances, her only child, lived.

During three years of caregiving, Frances had learned not to rush her parents. She knew they had slowed down and needed time to process change.

So Frances waited until her parents’ home health aide called with concerns about their ability to live independently. After discussing the situation with their physician, Frances approached her mother again. A move to assisted living would be a fresh start and allow the family to spend more time together, she said. After several conversations, her mother finally agreed.

Frances, a psychologist, has some suggestions for parenting one’s parents.  For example, stay calm when disagreements arise with your elderly parents and tamp down your emotional reactions. Listen carefully to their concerns and let them know you’re trying to help them accomplish their goals, not impose your agenda.

Let them know you’re on their side.

Denise Brown was convinced her parents, Roger and Sally Loeffler, were making a terrible mistake. Roger, 84, had been diagnosed with bladder and prostate cancer and had undergone extensive surgery. Sally, 81, had suffered three internal bleeds and had one-third of her stomach removed.

Brown didn’t think they could live on their own anymore, and her parents had moved into a retirement community upon her recommendation. But then, at a family meeting, her mother stood up and said, “I’m not dying in this dump. I hate it here.” As Brown and her siblings turned to their father, he said, “I’ll do whatever your mom wants.”

When her parents decided to move to an apartment, Brown confronted them. “I raised my voice and said, ‘This is not good, this is terrible,’” she said. “They said: ‘It doesn’t matter; this is what we’re going to do.’”

Although Brown thought her parents would be safer and have a more “gentle” death in the retirement community, “it occurred to me this wasn’t what my parents wanted. They valued their independence. It’s their decision about how the end of life plays out.”

Brown let her parents know she’d respect their wishes but would need to set limits. Her work — Brown is the founder of CareGiving.com — had to be a priority, and her parents would need to arrange other assistance if she couldn’t be available. (Brown’s two brothers and sister help out.)

What doesn’t work: trying to communicate when any one of them is tired or angry.

What does work: “asking them questions like, how do you think we should try to solve this problem?”

Stop expecting your parents to be as they used to be.

After her father’s death, Loi Eberle was distraught when her mother, Lucille Miller, became involved with a man she and her siblings didn’t like. With his encouragement, Miller invested in real estate and lost a great deal of money.

But nothing Eberle or her siblings said could convince her mother that this relationship was destructive.

Eberle struggled with resentment and anger as her mother’s needs escalated after a heart attack and a diagnosis of myasthenia gravis, a severe neurological disease. “Mom and I had this love/hate relationship all my life, and there was a huge need for healing in this relationship,” she said.

In 2012, Eberle moved Miller, then 89, from her longtime home in Minneapolis to a nursing home in northern Idaho, near where Eberle lives. Gradually, she realized that her mother “had transitioned to being someone else” ­— someone who was vulnerable and at her life’s end.

“I think for a long time I had this idea that I was going to help Mom come back to who she was, and I spent a lot of time trying to do that,” Eberle said. “I finally had to forgive myself for failure and understand that this is the life process.”

With this shift in perspective, emotional tension dissipated. “When I’d visit, my mother was always so happy to see me,” Eberle said. Miller died in March 2017 at age 94.

Letting go of unrealistic expectations can defuse conflicts. This is the final stage of your journey with your parents. Try to put angst to one side and help make this time meaningful for them and for you. Most of all, your parents want to feel emotionally connected and accepted, even in a diminished state.

Kaiser Health News (KHN) is a nonprofit news service covering health issues. It is an editorially independent program of the Kaiser Family Foundation that is not affiliated with Kaiser Permanente.